McMillan Clan

B12 makes you hyper

Isaac has been getting the shots for almost a month now. At first we were giving him a low dose( not on  purpose) we just didn't have the correct dosage. Soon we figured that out and now we are seeing the side effects of the b12. It should last 2-6 months while he is taking the b12 and his body is adjusting to this new burst of energy. It is amazing to see Isaac babblibg, laughing, running and playing when we are used to seeing him sitting by himself in a corner and staring at a book. Last night he babbled words that sounded like "night, daddy, mamma, no" - he is still babbling, but he comes to us when we call him....

 It is amazing to see him come back to us when we say " Isaac, come here, come back"-- he has never done this, and we are grateful to God and to those that God has  lead us to in this journey of Rehabilitation from Autism.  We have started a new supplement called DMG that helps his brain.

This is cut from website that explains what DMG is:

WHY DMG?

• DMG (N,N-Dimethylglycine) is a metabolic enhancer that can provide increased benefits when supplemented even if there isn’t a deficiency.
  
• DMG makes the process of metabolism (breaking down or building up of compounds in the body) quicker and more efficient.
  
• DMG is a completely safe hypoallergenic nutrient.
  
• We don’t produce as much DMG as we grow older or if we are immune compromised, which leaves us more susceptible to stress and infection.
  
• DMG improves oxygen utilization, detoxification, cell protection, immune system modulation, and enhances the healing.
  
• Extensive research with animals and in clinical testing shows that DMG is an adaptogen that helps maintain homeostasis.

He is still taking his daily vitamin with p5p. This excerpt is taken from kirk man labs website:

Why might I choose a formulation that contains P-5-P?

P-5-P stands for pyridoxal 5-phosphate.  Formulations of Super Nu-Thera® that feature P-5-P as part of the vitamin B-6 source are intended for those individuals whose physician has determined that the usual form of vitamin B-6 (pyridoxine hydrochloride) is not being utilized completely.  P-5-P is the metabolically active coenzyme of pyridoxine, and is an essential cofactor in many enzymatic reactions in amino acid metabolism.

We need to complete this week for the DMG and then we will start the COD liver OIl on Friday. The Cod liver oil will help with brain function.

There is a list from our doctor of other supplements that he needs, but I haven't added them yet. He needs much more vitamin C, more vitamin b6...

But every night this week and the week past...Isaac has not been able to quiet down for sleep for several hours. He gets so riled up that he runs, and laughs hysterically. He is so hyper, and I know he is tired, and I know its the vitamin b12 working.

SO we have been using Melatonin to help with sleep this week.

One good piece of advice that some one has given me is to treat Isaac like all the other kids, and talk to him like he is listening, like he knows what I am talking about. This has helped. Before I would just assume that he couldn't understand anything that I have said, but I see it in his eyes now that he is able to understand some....

The girls are a big help. I really appreciate them and am grateful that they can help their brother. On another note the medical bills have started to come in the mail. It will be God's power that will help us pay the bills. I just found out that Isaac's therapy for Occupational and Speech is going to cost us a monthly copay of 120 dollars. I thought that this would be covered by the supplemental insurance but the supp. insurance doesn't cover "pre-existing conditions" for the first 6 months of coverage. So for the first 6 months of coverage we are going to be paying this. God will provide. I am sure that we will be able to pay it.... Thank God it isn't more than this.

Isaac is still getting ABA, and I am going to ask about making a central communication board in the house for him. I think that this will help.Isaac has started pulling us to get our attention, and grunting and making sounds... his brain is waking up....Great things are happening.... God is so good to us.

On another task, I have looked into "clearing Isaac's allergies"- and have found a particular inexpensive practitioner to help, but she doesn't have her liscence right now, so we won't be able to go down that route right now. The hearing aspect is not going to be traveled right now. Where there is not much funds I have stopped pursuing that side until we can see that we have access to more funds. The ABr that Isaac needs will cost to much for us (we pay a copay) so we are going to wait. This is not a big deal because he doesn't act like he can't hear now that he is getting his b12 shots. He is responding. This ABR was needed mostly to getting enhanced hearing help, or listening therapy...

We have been giving our own version of therapy at home to him. We turn up spme mozart and help his ears to process the music. He is starting to enjoy music. We also play other instrumental music. We will not see if it is working, I have yet to find someone that can give me some free advice in this area of listening therapy. I have done my own research, but haven't found a place that I can look to for a listening therapy CD to play at home.

There are things that I can't do but I have asked God to provide, to do what we can't do, and HE had shown me that He is in control, and providing. God is Good to us, more than we deserve.

Way to go!

Unlocking the Mysteries of Creation and SOW

We had the blessed opportunity to travel to the creation museum this past September. SInce this time I have been wanting to teach the girls more about creation, so that they can be prepared when those that want to debate them surface. I hope that many will accept our view but I don't count on it, after all the bible does say that the enemies will hate you....so I am preparing them to be able to speak for themselves when it comes to what the bible says about creation.

Recently we started a new curriculum that calls for a new book titled "Unlocking the mystery of creation."

We started looking at it last night, and I must say it is way above their heads in sense of language and reading. This of course doesn't discourage me, I have security in knowing God has led us this way. SO we are going to "dig in" to this new book, and we will all be able to answer those that believe in evolution and people that just don't believe that the bible is true. We are getting prepared!.

The book has many pictures and many pondering thought provoking topics that the kids have to dig deeper and research in order to complete their assignments.

The curriculum first looked daunting, but it really is not, and is more practical for our family since we have an autistic little boy running around, and a toddler getting into everything. I have decided to do a daily assignment list for the girls, and have all five days made up on or before monday for that week's assignments. I am incorporating housekeeping tasks into the curriculum so that the girls can practice their housekeeping skills. Cooking and arts and crafts will also be included. One week of curriculum is a lesson in science/geo/history, then one in english, spelling, and handwriting (bible verse) can be done daily. Literature can be a pick of your favorite christian books. Right now we are using a book called The Christian Mother Goose Big Book. The poems are wonderful, and all Christ Centered.  I have scanned the black and white pages so that the girls can color them while they read the poem.

The SOW curriculum (Student of the Word) is a great bible based homeschooling choice. I like it, and will be incorporating my own lessons to teach them. For Instance we really like Narnia, and will be using it some in two weeks. The curriculum calls for using the book by C.S. Lewis called the Screw Tape letters...well I read the reviews, did some reading of my own, and I don't like the book. I don't like the concept of a demon talking to another demon...it just gives me the creeps...so we will be using Narnia, and I will be coming up with a study guide for the girls to use.

The SOW curriculum only has 24 lessons, one each week. All subjects combine to form one lesson a week. The lessons seem to be themed for the week...like this week is creation. I am sure that we could continue even longer with our own made up studies so that we can lengthen the study.

Do you Hear what I hear?

Isaac doesn't respond when we call him, at least He didn't before b12 shots. Now he is starting to come to us when we call him. But this doesn't keep me from trying to get his hearing checked. Isaac has not always been the easiest kid to try to test the ears/hearing. He doesn't respond much to stimulation of sound....like a cartoon calling him or a stuffed toy trying to get his attention. It's like HE KNOWS that we are trying to get his attention so he shuts down.....

So most Doctors and Audiologists just can't get a a good reading. He actually had an ABR over a year ago that was military provided at a military hospital and it said that he was okay....yet he still does not react to sound like a typical kid....

He HATES the HAND dryers at McDonald's restaurants. He doesn't flinch when a Dog barks near his head....okay Isaac just what are you doing here?

SO I have been once again researching many different ways to help him with his ears. One method that has really sparked my interest for him, and me thinking that It could help is the tomatis method of listening/therapy. I just found out today that the therapy center he goes to also provides therapeutic listening therapy. I am thinking that we will probably do our own on the stereo at home. Mozart seems to be the only musician that I have read that can actually open up the vestibular system in the ear and actually get it working.

A theory that I have (and I do have a few about Isaac) is that he doesn't have a working vestibular system in his ear.... He is constantly spinning...yet he doesn't get dizzy...he doesn't have what we have ...that makes us sick if we spin like he does.

 If we get it working with continues music play that is stimulating to the ears...it could start working. I have read many reviews of people that have been helped....

Here is a link of a website that I have looked at for treating Isaac...

Please remember to turn the sound down lower if it is too loud...

So I looked into a place today and we went for an evaluation, and I can't find Isaac's old AB, which means he might have to have another one ( I hate him being sedated) so I hope that I can find it... I don't want him to have another one if he doesn't have to. The place is nice, and our insurance will cover it but they will only help if Isaac shows actual hearing loss, even if it is just a little....so I have to find that ABR or get another one...based on todays evaluation, the speech therapist there said that we should get him another ABR, because he just isn't responding...but Think that with more b12 he will come around...In fact, he is due for another shot tonight! This will be his 5th one.

Isaac has started babbling more, he sounds funny....he is slurring...which sounds like he is trying to say things...and he is ..for the first time in his life. So we WAIT, and pray and know that GOD is doing a Miracle in his little life. God is so amazing, we thank HIM for all that HE has done for Isaac.

So I ask you.....the next time your child talks to you, consider it a blessing from THE LORD that communication comes so easily...want you Thank HIM (The Creator of everything) for the Great Things He has done for you and your family?!

Getting better

Isaac has now had 4 b12 shots. The results may or may not be seen for some time. He doesn't have any bad side effects which is good, because he wouldn't be able to continue them if he was having a reaction. He doesn't like it when we give him the shots.... ew give it to him while he is awake.

We have seen changes...they are small to us...but we know it is progress....

 here are a couple of new things that he is doing.

He laughs when we catch him in the sink...and tell him to get out...it's like he wants to be caught, and he likes being a little stinker...

he knows how to operate the light switches now....(cause and effect)

He knows what the Television is

he comes most of the time know when we call him...

he is more aware...and looks at us...

He SMILES!!!!

when he gets hurt, he lets us know....

and he HUGS and KISSES....on his time though....

all of these things we have been waiting for over 3 years for him to do, and we are so glad that he is now able to do them. We know that only good things will come from his biomedical treatment.

The shots may seem traumatic to him, but they are helping him. This week I am going to start him on DMG. It also has b6 in it. I am sure that it will help. We will see the Dr. again sometime in December.

He will be receiving his b12 shots, vitamin with p5p, fish oils, and DMG.... this will go on for a week until we start Cod liver oil.

He is also on the GFCF diet, and we are watching his oxalate intake. I am also adding 1 teaspoon of organic lemon juice to his drink. This is supposed to help with the cut as ascorbic acid intake.

On top of ALL this, he is till getting his 35 billion probiotic everyday. It consists of 8 strains of good bacteria.

The rest of the family has had the flu, but we are all better now. We continue doing our school work...and housework, and Isaac's therapy sessions. The girls just started their first piano lessons from nice lady at church. so they are so excited. She comes to the house on thursdays.

Maybe I can get michael to bring out his ukulele and learn a little. We also have a violin, but it hasn't been used for many years....guess I might try to pick something  up if I ever have time. Michael also has a guitar, ....we have a whole lot of instruments...but not many lessons....sometime soon....

We are going "home" for Thanksgiving. We haven't been back to Georgia to live, but we visit as much as we can. My uncle has cancer just like my dad, so we are going to visit him. I don't think we willl be back there for Christmas. Michael is getting ready with his unit to head out overseas to Iraq/Afghanistan soon so he must prepare here at work. We aren't looking forward to this, but this willl be the first time he will have been deployed over there....only 7 months...a lot better than 15 months....

well...it's back to homeschooling and home caring......did I mention that we are using SOW this year? I didn't like it becausee I just didn't get it, but now we are forced to use it since we don't have the funds for other curriculum that would be easier on me.....but really this is better, because It causes me to study the BIBLE more, and prepare the lessons, give the girls their assignments. The whole family is involved. We are going to Jamestown next week... it's free for military so we are going to visit. Maybe even have a scavenger hunt for the girls.

One more thing...if Isaac was a typical child, he would be in track and field....that boy can run! He runs around the house like he is sprinting, with his head held high... he loves to run around. If he had on ice skates, he could spin and make YOU dizzy... he loves to spin....

 Thats all for now.....

Isaac is sick, but he is doing well!

Isaac has a double ear infection. This is probably his first real ear infection in two years. He started with a fever, and I thought I had made him sick by increasing his dosage of probiotics. We traveled to the dr.'s office in maryland, and now the Dr. has given us amoxicillin. So along with giving this to him three times a day we are giving him a b12 shot every third day. Last night michael gave him his second shot, but his first one by dad. It wasn't as difficult as I thought it would be.

We have seen some amazing results from the b12 so far. Isaac said "I love you"- to daddy last night. Granted it wasn't as intelligible as we would have liked, but michael knew he was trying to say it. Isaac has been wanting us to hold him, which is something he has never wanted. He has never really shown affection. This change is welcome, and we are loving it. This is proof that our baby is alive and trying to get ot of his own skin. Today I am going to give him  his vitamin with p5p and his probiotics. We will do this for another week, and then we are going to give him DMG.

Some families have told me that it might take several months to see the b12 work the way that it has for so many other families. I can tell you that Isaac's face looks different.

There is a lot I don't know...but it's making sense when I discover what it is...

The ABA tutor seems to think that Isaac's constant eye poking (yes, he pokes at his eyes a lot) is just a sensory issue.... I have thought in my gut (no pun intended) that there was something else going on...and there is. (was)

Isaac's OAT test came back (remember the urine test that was so easy to get), and Great Plains Lab sent me an explanation of what was going on with Isaac. This is on top of what Dr. Brenner told me about Isaac's low levels of ATP.

He does have elevated yeasts/fungal metabolites. Specifically...it states "indicating a yeast /fungal overgrowth of the gastrointestinal tract. Prescription or natural (botanical) anti-fungals, along with supplementation of high potency multi-strain probiotics (20-50 billion cfu's ) may reduce yeast/anti-fungal levels. We have been giving Isaac only about 16 billion cfu's a day, so I am increasing his dosage.

He has low citric acid, which we will supplement....

he has low ascorbic acid (vitamin c) so we have to supplement ..he needs 1000 mg a day.- divided into 2-3 doses...

Isaac has high Oxalic acid and oxalate.....this is where I saw, and GASPED at what it said about "eye poking"....

"Oxalate crystal formation in the eyes may be  source of severe eye pain in individuals with autism who may have eye- poking behaviors.

Foods high in oxalate's include beets, chocolate,peanuts,berries...potatoes!

He is already on a GFCF diet...so he can't have milk, wheat, flour, yeast, eggs, now this stuff...

so he will probably only eat lettuce, meat, and green beans. He can't eat broccoli, carrots, or tomato sauce.

We can give him calcium citrate every time he eats. This will help, according to Great Plains Lab.

Isaac had his first b12 shot yesterday. The Dr called this morning, and he was pleased with the results, although they weren't negative, they weren't dramatic either...but I am sure that it will take some time to see results.

Some results that we have seen are more eye contact, better focus, and he just looks alive. He laughs and when we tickle him or play, he laughs. He is actually playing with toys today, like a "normal" child would play with them.

He isn't talking yet, but I know it will come. He has cognitive abilities, and he is showing this to me everyday when he plays with toys, and uses his brain to work things out.

Today we are going to the store to get his calcium citrate and possibly some more probiotics.

He had his b12 shot, and I was so happy, that he was so mad! He has never showed so much emotion before than he did yesterday with Dr. Brenner. I was almost crying because Isaac pushed the Dr. away after he was given the b12 shot. I am sure that it hurt, but my son was being responsive to something....which is normal for a normal kid.... and I could see that there was some normal in him. I was happy. To get to the Dr's office I had to drive about 1.5 hours. It was well worth it. It's amazing, I asked what the bill was and so far, no bill....

The only thing that we have had to pay for is the 23$ for his b12 prescription today. It is coming in the mail and should be here by tuesday at the latest. I am sure michael will be helping administer the shots. Dr. Brenner gives them in the arm, and I have seen them in the back side. I am not sure where is best, but since I have seen the videos I am probably going to give it to him in the backside while he is sleeping.

The Human Body is Amazing! I know that Isaac can be helped, and healed. Thank You God for allowing a Plan to return to normalcy for my son.

Great things are happening....

We have been super busy lately, and next week we have an unscheduled visit to Isaac's new doctor. Most of the blood work came back for him, and the doctor called yesterday, left a message, and I called him back this morning.....

Isaac has a chemical imbalance that is preventing him from making enough ATP. According to wikipedia.... ATP is here...and man oh man is it confusing...but I know the Doctor is correct. So, first thing first.... we are going to start b12 shots!!! can you say YA Isaac!!!!!

 YaY! Isaac!!!!

I am so happy for him, because this is the start of better things to come. He actually has been doing very well on the probiotics. We are giving him 5 billion in the morning, along with chewable acidophilus which is 2 billion, and then 5 billion at night. I am thinking about upping the dosage though.

Today we are going to start Cod liver Oil. Hopefully he will want to take it....this will be the first time he has taken it. He has taken fish oil chewables before, but just not the straight fish oil....but it's strawberry flavored..so hopefully he can down it.....

The trip to the Dr. is an hour and a half, so we have to be ready to go, and hopefully we can go next week. Dr. Brenner wants to show us how to administer the b12 shots...since we will be giving them to Isaac at night time after he goes to sleep.

Yesterday I ordered DMG and P5P for Isaac from kirkman labs. These biomedicine's will help him tremendously.

No more corn chex for Isaac. This has been a staple breakfast food for him...but he is allergic. I saw him sneeze right after he ate it yesterday..which is a clear indicator he can't have it. So we are looking for something else. We have found Panda peanut butter puffs, which are gluten free... and he likes them. Don't know if he will get tired of eating them though.

SOmetimes I give him the digestive enzymes to help, but I am thinking about just restricting his diet so much, and giving the enzyme to see what happens. Poor Isaac, and every other Autistic kid that goes thru biomedical... they are guinea pigs when it comes to what works....there is not certain "one protocol" that makes them all better... everyone of them is different because of their blood, their body, and what is happening inside. Wish I could push an easy button, or bring up a computer like DATA from star trek, and find out what exactly is going on in their bodies.

Isaac has been a joy to be around, and to see God work in his life. It is amazing what just one thing will do for your body. The probiotics (good bactria) are making him smile appropriately, act like a normal three year old sometimes. He is cuddling with us, and hugging when he wants to, and sometime giving us kisses. This is more than we could have EVER hoped or dreamed about 1 year ago. It is because God is working, and we are seeing amazing results thru the treatment plan that HE has shown us. I am amazed and blessed.  

flu shot warning

Growing up is hard to do.....

Isaac's ABA Therapist mentioned to me today that Potty training would be beneficial for Isaac if he ever wanted to hold any kind of menial job when he grew up. I can't picture my boy working a wal-mart job, or another job that involves those that are mentally challenged, being helped by society. It's a good thing for those people but my boy is smart. He is trapped, and that is something that many people just don't understand. Having Autism, does not mean that someone can not think at all. The brain is stuck, and communication is not available, even for my boy. Biomedical Medicine is helping him. It comes at a time that he is getting therapy thru ABA, and Speech, and OT, just like many other autistic kids these days. ABA and Ot and Speech are all helping, but the main thing that is going to improve Isaac is the Biomedical.

I can't see him potty training until he can talk. But we are going to try it. Isaac's new doctor is in such demand, I can't get a follow up until february. This of course is not acceptable, and I have to call the doctor next week, and talk to him about test results, and his recent starting of treatment. I am Praying that Isaac's B12 therapy can start soon. The b12 shots are supposed to unlock the talking and language in him, which I am hoping will come soon as a result of the b12 shots. We can't get them until the test results come back showing what is going on with his b12 levels.

Dr. Neubranderhas a b12 therapy that has been documented and is going to be if not already undergoing clinical trials, and lab tests to show the dramatic improvements in autistic kids after b12 shots. To see some videos click here.